Operation House Call

 

Operation House Call (OHC) is an innovative medical education program that began in 1991 as collaboration between The Arc of Greater Boston and Boston University School of Medicine (BUSM).  Under the leadership of Dr. Benjamin Siegel, pediatrician, and Dr. David Coulter, neurologist, The Arc consulted with parents of children with special health care needs to develop Operation House Call’s curriculum.  Dr. Coulter, whose brother has significant intellectual and developmental disability, believed families would be excellent teachers of doctors.  Twenty years later, under The Arc of Massachusetts, the teaching thrives, guided by a parent instructor, co-teachers (persons with I/DD), and our volunteer families.
 
Operation House Call builds skills so that professionals can be effective providers of health care for individuals with intellectual and developmental disabilities. At BUSM Operation House Call is a requirement for all third year medical students, and is taught during their pediatric rotation.  Key components of the training include an orientation class taught by a parent instructor, and a home visit to one of our 50-60 volunteer families who have a child with a developmental disability.  An online website with articles and resources and a private online forum requires each participant to review their learning with feedback from the parent instructor. 
 
Medical as well as non-medical issues are addressed as students learn about communication, supports, transitions, services and family dedication, providing new perspectives and skills for their future practice. At the core of this teaching is the belief that families can be the best teachers, sharing their love, experience, advocacy, joys and concerns, to inspire the medical community of the future.
 
“It was a privilege to be part of this truly outstanding program. I have witnessed first hand…the impact of (the student) visits and I believe this kind of training is as powerful and significant as any."  (Parent volunteer, 2010)
 
“I can’t speak highly enough of this program – Operation House Call was the most eye-opening and inspiring experience of the (pediatric) rotation by far. Thank you for doing this, and I hope that future medical students will be able to continue to experience this year after year.” (3rd year medical student, 2011)  
 
Over 180 Boston University doctors successfully complete Operation House Call’s program each year. The Arc of Mass is now gathering funds and resources to be able to offer this course to other interested medical schools and schools of advanced nursing practice.
 
To learn more about our team, click on their names below:
·        Susanna Peyton, Advisor, OHC Adviser
·         Maura Buckley, Parent Instructor, OHC Parent Instructor at Boston University School of Medicine
·         Ann Bersani, Parent Instructor and Development Associate, OHC Parent Instructor at Simmons School of Nursing and Health Sciences
.    Melanie McLaughlin, OHC Parent Coordinator at Tufts University School of Medicine 
 

Click here to read an article in Pediatric Annals that highlights Operation House Call.

 

 
BU/OHC medical student, Kunal Sanga, interacting with Jack Ursitti at his home  

  

Click here to read an article or listen to audio published by Public News Services on Operation House Call.
 

Contributors of OHC

OHC is funded in part by a charitable contribution from the MDSC.  
 
OHC also receives some funding from the Boston University School of Medicine and The Arc of Massachusetts. 
 
How Can You Support OHC? 
 
We are currently raising funds to expand our disability awarenss program to Tufts University School of Medicine and Simmons School of Nursing and Health Sciences and to maintain the current program at Boston University School of Medicine. This academic year OHC will reach over 300 medical and nursing students. If you would like to make a contribution, please contact The Arc of Massachusetts today by email at arcmass@arcmass.org or phone at 781-891-6270 ext. 101. You can also make an online tax-deductible contribution at www.arcmass.org by clicking on “Donate Now.”  (Note: Please type Operation House Call in the notes section at the bottom of the “Donate Now” webpage.)

Health Care Project Mission

Our mission is to champion access to optimal health care for individuals with intellectual and developmental disabilities (I/DD). Underlying this mission is the belief that all individuals have a right to easily accessible, culturally competent, and high-quality health care in the community.

About the Health Care Project
Our goal is to advance overall health and mortality outcomes of people with disabilities, especially individuals with intellectual and developmental disabilities (I/DD), because there are preventable differences in the life expectancy, co-morbidity, and mortality among I/DD as compared to the general population. We work to improve overall health through advocacy, education, and advancement of best practices.

 

The project is based on our research and literature about health inequities.  See our research report here.
 
In November, 2010, Rolanda Ward, Amanda Nichols (project director), and Ruth Freedman were published in Health and Social Work. Article is titled “Uncovering Health Care Inequalities among Adults with Intellectual and Developmental Disabilities”.  Link here.
 
To keep up with Medicare/Medicaid or duals policy updates please go to our Health and Wellness page.
 
 
 

Policy & Education

MassHealth is working on the "Integration of Medicare and Medicaid." This change will have a significant impact on our constituents.  Go here for background on this issue and responses from The Arc.  See Medicare and Medicaid Combined.

 

New medical respite home opens in December 2011 in the Southeast! Open to entire state. See the Brochure here.

  

Policy and education objectives were primary recommendations of our research report.  This link reflects the most recent goals/objectives of the project.  It is updated from time-to-time.

 
 
The project is guided by an advisory committee.  Members play various roles ranging from attending secretariat or commissioner level meetings on health inequities and systems change, assisting in reviewing policies and legislation, discussing best strategies on addressing barriers and participating by making presentations or educating health professionals and others.   
 
As noted above in November 2010, an article from the project and colleagues was published in a national journal. 
 
In December 2010, a conference on Healthy Outcomes was co-hosted by Springfield College and included more than 120 participants.
 
The project utilizes webinars, conferences and outreach sessions to work with constituents, health professionals and long term support providers.
 
Go to the adjoining section on this page to obtain information and resources.