The Health Care Project's Mission

The Arc of Massachusetts' Health Care Project’s mission is to champion access to optimal health care for individuals with intellectual and developmental disabilities (ID/DD). Underlying this mission is the belief that all individuals have a right to easily accessible, culturally competent, and high-quality health care in the community.

About The Project
Our goal is to advance overall health and mortality outcomes of people with disabilities with a focus upon individuals with intellectual and developmental disabilities (I/DD) through advocacy, education and advancement of best practices.
 

There are preventable differences in the life expectancy, co-morbidity, and mortality among I/DD as compared to the general population.

 

To keep up with Medicare/Medicaid or duals policy updates please go to our Health and Wellness page.

 
The project is based on our research and literature about health inequities.  See our research report here.
 
In November, 2010, Rolanda L. Ward, Amanda Nichols (project director), and Ruth I. Freedman were published in "Health and Social Work",

“Uncovering Health Care Inequalities among Adults with Intellectual and Developmental Disabilities”.  Link here.


Policy & Education

New medical respite home opens in December 2011 in the Southeast! Open to entire state. See the Brochure here.

The respite home is available to eligible adults for Dept. of Developmental Services (DDS) who are 18 years of age or older throughout Massachusetts who meet the following criteria:  Presently receiving in-home nursing or eligible for MassHealth continuous nursing services (CNS) as authorized through the Community Case management (CCM) Program and/or diagnosed with chronic, potentially life threatening medical condition(s) requiring skilled nursing assessments and daily technological and/or medical interventions from trained family, support staff or health professionals. 

MassHealth is working on the "Integration of Medicare and Medicaid" - this change will have a significant impact on our constituents.  Go here for background on this issue and responses from The Arc.  See Medicare and Medicaid Combined.

Policy and education objectives were primary recommendations of our research report.  This link reflects the most recent goals/objectives of the project.  It is updated from time to time.

Dental Policy Reminder:  Although the state budget did cut back on Medicaid dental benefits for adults, DDS (Dept. of Developmental Services) eligible persons continue to be covered under Medicaid for all dental services (preventive, restorative).  A letter from Commissioner Howe can be downloaded or printed if you need it for verification. Choose dental benefits document on this page.
 
 
The project is guided by an advisory committee.  Members play various roles ranging from attending secretariat or commissioner level meetings on health inequities and systems change, assisting in reviewing policies and legislation, discussing best strategies on addressing barriers and participating by making presentations or educating health professionals and others.   
 
As noted above in November 2010, an article from the project and colleagues was published in a national journal. 
 
In December 2010, a conference on Healthy Outcomes was co-hosted by Springfield College and included more than 120 participants.
 
The project utilizes webinars, conferences and outreach sessions to work with constituents, health professionals and long term support providers.
 
Go to the adjoining section on this page to obtain information and resources.
 
 

Operation House Call

Operation House Call is an innovative medical education program that began in 1991 as collaboration between The Arc of Greater Boston and Boston University School of Medicine (BUSM).  Under the leadership of Dr. Benjamin Siegel, pediatrician, and Dr. David Coulter, neurologist, The Arc consulted with parents of children with special health care needs to develop Operation House Call’s curriculum.  Dr Coulter, whose brother has significant intellectual and developmental disability, believed families would be excellent teachers of doctors.  Twenty years later, under The Arc of Massachusetts, the teaching thrives, guided by a Parent Coordinator and our volunteer families.
 
Operation House Call builds skills so that professionals can be effective providers of health care for individuals with intellectual and developmental disabilities. At BUSM Operation House Call is a requirement for all third year medical students, and is taught during their pediatric rotation.  Key components of the training include an orientation class taught by a Parent Coordinator, and a home visit to one of our 50-60 volunteer families who have a child with a developmental disability.  An online website with articles and resources and a private online forum requires each participant to review their learning with feedback from the Parent Coordinator. 
 
Medical as well as non-medical issues are addressed as students learn about communication, supports, transitions, services and family dedication, providing new perspectives and skills for their future practice. At the core of this teaching is the belief that families can be the best teachers, sharing their love, experience, advocacy, joys and concerns, to inspire the medical community of the future.
 
“It was a privilege to be part of this truly outstanding program. I have witnessed first hand…the impact of (the student) visits and I believe this kind of training is as powerful and significant as any."  (Parent volunteer, 2010)
 
“I can’t speak highly enough of this program – Operation House Call was the most eye-opening and inspiring experience of the (pediatric) rotation by far. Thank you for doing this, and I hope that future medical students will be able to continue to experience this year after year.” (3rd year medical student, 2011)  
 
Over 180 Boston University doctors successfully complete Operation House Call’s program each year. The Arc of Mass is now gathering funds and resources to be able to offer this course to other interested medical schools and schools of advanced nursing practice.
 
To learn more about our team, click on their names below:
·        Susanna Peyton, Advisor
 

Click here to read an article in Pediatric Annals that highlights Operation House Call.